Recruiting

Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry

Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.

ClinicalTrials.gov IDNCT02249923

PhaseNot Applicable

Enrollment2500

SponsorNew York Medical College

Age1 Day

SexALL

I'm interested View official listing

Conditions studied

Pulmonary Vascular Disease, Pulmonary Arterial Hypertension

About this study

Primary outcomes

Time to clinical worsening (12 months)

Eligibility information

Inclusion Criteria: * The subject's age of onset of pulmonary hypertension must be prior to age 18 years * The person providing consent must be able to read either Spanish or English. * The subject (and/or parent/legal guardian) must be able to provide informed consent Exclusion Criteria: * Diagnosed with pulmonary hypertension after age 18 * Refusal to sign informed consent

Study locations

Stanford University Medical Center, Palo Alto, California United States
University California San Francisco, San Francisco, California United States
Children's Hospital Colorado, Aurora, Colorado 80045 United States
Johns Hopkins All Children's Heart Institute, St. Petersburg, Florida United States
Johns Hopkins Children's Center, Baltimore, Maryland United States
Boston Children's Hospital, Boston, Massachusetts United States
Columbia University Medical Center, New York, New York United States
Maria Fareri Children's Hospital at WMC Health/Westchester Medical Center, New York, New York United States
Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio United States
Children's Hospital of Philadelphia, Philadelphia, Pennsylvania United States

Showing 10 of 14 reported sites. See the official listing for all locations.

Before you participate: Varda Clinical is an independent discovery tool, not the study sponsor or a medical provider. Eligibility can only be determined by the official study team. Discuss potential risks and benefits with a qualified healthcare professional.

Source: ClinicalTrials.gov. Record last refreshed by Varda Clinical: 2026-09-27.