Austrian PBC Registry

Conditions studied

Primary Biliary Cholangitis, Liver Cirrhosis, Portal Hypertension

About this study

The goal of this registry is to better understand how primary biliary cholangitis develops over time, including the role of disease-related biomarkers, complications of the disease, and symptom burden. Patients with primary biliary cholangitis treated at participating centres in Austria will be invited to take part in this prospective registry. Participation in an associated biobank is optional. Clinical and laboratory data will be collected, and patients will be followed regularly through scheduled clinic visits. In addition, biological samples (serum, plasma, and, if available, liver tissue) may be collected and stored in the biobank for future research.

Primary outcomes

• Transplant-free survival (Through study completion, an average of 5 years)

Eligibility information

Study locations

• Klinikum Klagenfurt am Wörthersee, Klagenfurt, Carinthia 9020 Austria
• Universitätsklinikum St. Pölten, Sankt Pölten, Lower Austria 3100 Austria
• Universitätsklinikum Salzburg, Salzburg, State of Salzburg 5020 Austria
• Klinik Landstraße, Vienna, State of Vienna 1030 Austria
• Medizinische Universität Wien, Vienna, State of Vienna 1090 Austria
• Klinik Ottakring, Vienna, State of Vienna 1160 Austria
• Medizinische Universität Graz, Graz, Styria 8036 Austria
• Medizinische Universität Innsbruck, Innsbruck, Tyrol 6020 Austria
• Ordensklinikum Linz - Barmherzige Schwestern, Linz, Upper Austria 4010 Austria
• Kepler Universitätsklinikum, Linz, Upper Austria 4020 Austria

Showing 10 of 11 reported sites. See the official listing for all locations.